ACE
Supports self-advocacy in Suffolk for people who use
learning disability service. Tel: Saxmundham 01449
678088 or Tel: Saxmundham 01728 604399. E-mail:
acepeoplefirst@bt.connect.com
AIDS
- Fightback Trust Supporting HIV positive people & raising awareness in the community on a county-wide basis.
- Mon-Fri: 11am-3pm, closed Thurs.. Michael Williams, 7 Beach Road, Lowestoft, NR32 1EA. Tel: 01502 531300 Fax: 01502 538911
Website: www.fightbacktrust.org.uk
E-mail: fightbacktrust@tiscali.co.uk
- Ipswich & Suffolk AIDS Helpline
Tel: 01473 232007
- National AIDS Trust
Tel: 020 7814 6767
- Terrence Higgins Lighthouse Trust
Helpline: 0845 122 1200 Website: www.tht.org.uk
- West Suffolk AIDS Line
Tel: 01284 775280 Email: wsaidsline@lhp.nhs.uk
Advice line for people with AIDS/HIV, where people can get help, especially testing.
- Service covers Bury St Edmunds, Newmarket, Sudbury, Lavenham, Lakenheath, Mildenhall & Haverhill.
ALCOHOL
- Al Anon Family Group
Provides help to those affected by someone else's drinking. Telephone for details of local branches.
Tel: 0207 403 0888 (10am 10.00pm helpline).
- Alcoholics Anonymous
PO Box 1, Stonebow House, York, YO1 7NJ. NATIONAL HELPLINE: 0845 769 7555
- Norcas
For advice and counselling regarding substance misuse.
Ipswich - The Lower Brook Street Centre, 41 Lower Brook St, Ipswich, IP4 1AQ.
Tel: 01473 259382 Fax: 01473 289471 Email: ipswich@norcas.org.uk
Lowestoft - 10-12 Regent Road, Lowestoft, NR32 1PA.
Tel: 01502 513444. Email: lowestoft@norcas.org.uk
- Suffolk Drugs & Alcohol Helpline See entry under Drugs
ALZHEIMER'S
SOCIETY
National Contact Details:
Gordon House, 10 Greencoat Place,
London, SW1P 1PH
Helpline: 0845 300 0336 - Fax: 020 7306 0808. Mon-Fri
8.30am-6.30pm
Website: www.alzheimers.org.uk
E-mail: info@alzheimers.org.uk
Regional groups:
- West Suffolk 01284 766433 (Mondays and Thursdays)
- East Suffolk Mon-Fri: 10 3pm. Tel: 01473 211050
- Lowestoft Tel: 01502 51471
ANKYLOSING SPONDYLITIS
National Ankylosing Spondylitis Society. Tel: 020 8948 9117, Fax: 020 8940 7736 E-mail: nass@nass.co.uk
ARTHRITIS
CARE
18 Stephenson Way, NW1 2HD. Helpline Tel: 0808 800 4050
E-mail: info@arthritiscare.org.uk Website: www.arthritiscare.org.uk
Regional Office for Central England (including Suffolk) Tel: 0115 952 5522
Branches in Felixstowe, Ipswich and Newmarket
ARTHRITIS
RESEARCH CAMPAIGN
Copeman House, St Mary's Court, Chesterfield, S41 7TD.
Tel: 0870 850 5000 Fax: 01246 558007
E-mail: info@arc.org.uk Website: www.arc.org.uk
ASSOCIATION
FOR SPINA BIFIDA AND HYDROCEPHALUS (ASBAH)
Helpline Tel: 0845 450 7755
42 Park Road, PE1 2UQ. Tel: 01733 555988 Fax: 01733 555985
E-mail: info@asbah.org.uk Website: info@asbah.org.uk
ASTHMA
See Lung Conditions
AUTISM
See Autism Suffolk
BEFRIENDING
SCHEMES
- Age Concern Befriending Network Tel: 01473
288047
- Newmarket Befriending Scheme Tel: 01638
608048
- Mildenhall Tel: 01638 716910
BELLS
PALSY HELPLINE
Great Yarmouth & Waveney. Tel: 01502 563256
Website: www.bellspalsy.org.uk
BONE
National
Osteoporosis Society
Camerton, BA2 0PJ. Helpline Tel: 0845 4500 230
E-mail: nurses@nos.org.uk Website: www.nos.org.uk
Suffolk Support Group Jean Nunn . E-mail: jean.nunn@ukonline.co.uk
Website: www.nos-suffolk.org.uk
Brittle Bone
Society
30 Guthrie Street, Dundee, DD1 5BS. Helpline Tel: 08000 282459
E-mail: bbs@brittlebone.org
Website: www.brittlebone.org
CANCER
Breast Cancer Care
61-63 St John St, EC1M 4AN. Tel: 0808 800 6000
Website: www.breastcancercare.org.uk
Ellie Savage Memorial Trust
Raises money to support research into brain tumours &
to help relieve the suffering in children living with
cancer. Wendy Savage. Tel: 01502 539509
E-mail: use website contact page Website: www.ellietrust.org
CHILD
CARE INFORMATION SERVICE
Tel: 0845 608 0033
CRUSE
Bereavement care and counselling. Day by day helpline Tel: 0844 477 9400 Administration Tel: 020 8939 9530.
E-mail: helpline@cruse.org.uk
Website: www.crusebereavementcare.org.uk
- West Suffolk Tel: 01284 767674
- Ipswich & Suffolk Coastal Tel: 01473
230888
- North Suffolk & Great Yarmouth Tel: 01502
722234
CYSTIC
FIBROSIS
Support helpline: 0845 859 1000
Website: www.cftrust.org.uk
DEVELOPMENTAL
Mencap
Help & advice to people with learning difficulties & their families. There are local branches throughout Suffolk. Tel: 020 7454 0454
Bury St Edmunds Tel: 01284 753526
Ipswich Tel: 01473 437241
Lowestoft & Waveney Tel: 01502 580886
Woodbridge & District Tel: 01473 622443
DIABETES
UK
10 Parkway, London, NW1 7AA. Tel: 0845 120 2960
E-mail: info@diabetes.org.uk
Website: www.diabetes.org.uk
Eastern Region Tel No: 01376 501390
DISABLED
PARENTS NETWORK
A support network providing support on pregnancy & parenthood for disabled people. Tel: 0870 241 0450
E-mail: information@disabledparentsnetwork.org.uk Website: www.disabledparentsnetwork.org.uk
DOWN'S
SYNDROME
Local Opportunities & Awareness of Down's
Syndrome (LOADS)
A support group for people who have Down's Syndrome, their families & carers. The organisation covers the whole of East Anglia. Tel: 01473 430434
E-mail: loadsadmin@googlemail.com
Website: www.loads.org.uk
DRUGS
- Community Drugs Team
For advice & counselling. 37 Berners Street, Ipswich, IP1 3LN. Tel: 01473 236069
- Norcas
See entry under Alcohol
- Suffolk Drugs & Alcohol Helpline
Provides confidential, anonymous advice, information
& support about drugs and alcohol misuse to family
members, partners, friends, work colleagues or young
people who do not know who to turn to. (answerphone at
other times). Tel: 0808 800 1122
- West Suffolk Drugs Service
Advice & information on drug & alcohol issues. Open Mon-Fri: 9am-5pm (closed Thurs am). 2nd Floor, Bloomfield House Health Centre Bury St Edmunds IP33 1HE. Tel: 01284 775275
DYSLEXIA
- British Dyslexia Association
98 London Road, Reading, Berkshire, RG1 5AU. Tel: 0118
966 8271
Website: www.bda-dyslexia.org.uk
- Dyslexia Institute
137 New London Road, Chelmsford, Essex, CM2 OQT. Tel:
01245 259656
Email: chelmsford@dyslexiaaction.org.uk Website: www.dyslexiaaction.org.uk
- Suffolk Dyslexia Association
Tel: 01394 279709 Email: sda@beingdyslexic.co.uk
Website: www.beingdyslexic.co.uk/sda
- Hillcroft Preparatory School - Dyslexia
Unit
Undertakes tests & assessments as well as providing education for people with Dyspraxia, Dyscalculia and Asperger's Syndrome. 24 hour. Tel: 01449 673003
EPILEPSY
- Epilepsy Action
Head Office, New Anstey House, Gate Way Drive, Leeds, LS19 7XY. Tel: 0808 800 5050
Email: helpline@epilepsy.org.uk
Ipswich (24 hour helpline) Tel: 01473 461407 Waveney Pat Savage. Tel: 01603 783547
- National Society for Epilepsy
Chesham Lane, Chalfont St Peter, Buckinghamshire, SL9
0RJ.
Tel: 01494 601400. Website: www.epilepsynse.org.uk
FAMILY
WELFARE ASSOCIATION
Help for families and people with mental health needs
Tel: 020 7254 6251 Fax: 020 7249 5443
Email: fwa.headoffice@fwa.org.uk Website: www.fwa.org.uk
FIBROMYALGIA
SYNDROME SUPPORT GROUP
Meets the second Wednesday of each month at NHS Allington
House, 427 Woodbridge Road, Ipswich, IP4 4ER.. Lynn Crisp
. Tel: 0871 7503845 Email: sampetcar1@ntlworld.com
GOOD
NEIGHBOUR GARDENING SCHEME
Gill Robinson, c/o Volunteer Centre, 1 Kingston Villa,
Sun Lane, Newmarket, CB8 8EW. Tel: 01638 608048. Provides
help with gardening for disabled people at a reasonable
cost.
HEAD
INJURIES
- Headway
Day care for people suffering a traumatic head injury. Website: www.fwa.org.uk
Norfolk & Waveney Headway House, Trafalgar Road East, Great Yarmouth, NR31 6NX. Tel: 01493 442994
Ipswich & East Suffolk Headway House, Ipswich Hospital, Ipswich, IP4 5PD.
Tel: 01473 704159
West Suffolk c/o West End Road Home Guard Social Club, 53 Abbot Road Bury St Edmunds, IP33 3UB. Tel: 01284 702535
- Icanho
Provides a specialist day rehabilitation service for
people between the ages of 18 and 65 with a head
injury or stroke. Rehabilitation programmes are
designed to meet individual needs.. Suffolk Brain
Injury Rehabilitation Centre, Chilton Way, Stowmarket,
IP14 1SZ. Tel: 01449 774161
- Optua UK
Provides support to adults with acquired brain injury living in the community. A specialist service meeting the needs of people with complex needs. Optua House, Hill View Business Park, Claydon, Suffolk, IP6 0AJ.
Email: enquiries@optua.org.uk Website: www.optua.org.uk
HEART
RELATED
- British Heart Foundation,
14 Fitzhardinge Street, W1H 6DH.
Information Line : 08450 70 80 70 Fax: 0207 486 5820
Web: www.bhf.org.uk
- British Cardiac
Patients Association (Zipper Club)
National Helpline Tel: 01223 846845
Email: HelpMe@BCPA.co.uk
Website: www.bcpa.co.uk
East Suffolk Anita Postle Tel: 01787 370850
West Suffolk Brian Hartington Tel: 01284 762783
- Heartbeat East Suffolk
Tel: 01473 686371
- Heartcare Cardiac Support Group (Lowestoft
& Waveney)
Jill Griggs (Membership Secretary) Tel: 01502 569512
Email: jillie@talktalk.net
HUNTINGDONS
DISEASE ASSOCIATION
Down Stream Building, 1 London Bridge, London, SE1 9BG Tel: 0207 022 1950 Fax: 0207 022 1953
Email: info@hda.org.uk Website:
www.hda.org.uk
KIDNEY
PATIENT ASSOCIATION (BRITISH)
For people with kidney problems, particularly those on dialysis.
Bordon, GU35 9JZ. Tel: 01420 472021. Website:
www.britishkidney-pa.co.uk
LEUKAEMIA
CARE SOCIETY
24 hour care line. Tel: 0800 169 6680
Email: enquiries@leukaemiaCARE.org.uk
Website:
www.leukaemiacare.org.uk
LIMBLESS
DISABLED
- British Limbless Ex-Servicemans Association
(BLESMA)
HQ Tel: 0208 590 1124 Website:
www.blesma.org
- Limbless Association
Queen Mary's Hospital, Roehampton Lane, SW15 5PR. Tel: 0208 788 1777
Website:
www.limbless-association.org
LUNG
CONDITIONS
- Asthma
UK
Summit House, 70 Wilson Street, London, EC2A 2DB. Tel: 0845 701 0203
Website: www.asthma.org.uk
- Breathe Easy (Great Yarmouth &
Waveney)
Support group for people with lung conditions. Regular meetings are held on the last Wednesday of each month at 2.15pm at Hopton Village Hall, Station Road, Hopton. Tel: 01493 730258
See also Website: www.lunguk.org
LUPUS
UK
St James House, Eastern Road, Romford, Essex, RM1 3NH. Tel: 01708 731251
Email: headoffice@lupusuk.org.uk Website:
www.lupusuk.com
ME (Myalgic
Encephalomyelitis)
- Action for ME
Third Floor_Canningford House_38 Victoria Street_Bristol_BS1 6BY
Tel: 0845 123 2380
Email: admin@afme.org.uk
Website:
www.afme.org.uk
- Beccles & District ME/CFS Support Group
Contact Brian Hindle. Tel: 01986 893676.
Website: www.becclestown.co.uk/beccles-me-support
- Framlingham & District ME Support Group
Aims to support & give information for people
suffering from ME & their carers. Services include
newsletters, transport to meetings, book library, etc.
Mrs A Rose, 62 Kings Avenue, Framlingham, IP13
9HD.
- ME Association
4 Top Angel, Buckingham Industrial Park, MK18 1TH. Helpline: 0870 444 1835
Email: meconnect@meassociation.org.uk Website:
www.meassociation.org.uk
MIND
Support, information & advice on mental health
issues.. 15-19 Broadway, E15 4QB. Tel: 0845 766 0163
Website: www.mind.org.uk
East Suffolk Tel: 01473 231666
Email: info@eastsuffolkmind.org.uk
Website: www.eastsuffolkmind.org.uk
Great Yarmonth & Waveney Tel: 01493 842129 Email: penny@gymind.org
West Suffolk Tel: 01284 764808 Email: sue@westsuffolkmind.org.uk
MOTOR
NEURONE DISEASE ASSOCIATION
PO Box 246 NN1 2PR. Helpline: 08457 626262
Email: mndconnect@mdnassociation.org
Website: www.mndassociation.org
MULTIPLE
SCLEROSIS SOCIETY
MS National Centre, 372 Edgware Road, NW2 6ND. Tel: 0808
800 8000
Website: www.mssociety.org.uk
Regional contacts:
- Bury St Edmunds & District Tel: 01284 723 110
- Newmarket & District Tel: 01638 731488
- North Suffolk & District Tel: 01493
393999
- South Suffolk Tel: 01473 828731
MUSCULAR
DYSTROPHY CAMPAIGN
7-11 Prescott Place, SW4 6BS. Tel: 0207 220 8055 Fax:
0207 498 0670
Email: info@muscular-dystrophy.org
Website: www.muscular-dystrophy.org
Regional contact Anne Jackson, Tel: 01787 313 913 Email: anglia@muscular-dystrophy.org
NATIONAL
OSTEOPOROSIS SOCIETY
See entry under BONE
PARKINSON'S
DISEASE SOCIETY
215 Vauxhall Bridge Road, London, SW1V 1EJ. Helpline:
0808 800 0303
Email: enquiries@parkinsons.org.uk
Website: www.parkinsons.org.uk
- Bury St Edmunds Helen Stiff . Tel: 01359
241611
- Felixstowe Patrick Paris Tel: 01394 671479
- Ipswich & East Suffolk Diana Talbot . Tel:
01473 711606
- Great Yarmouth & Waveney Mrs Pauline Euinton .
Tel: 01493 445314
- Newmarket Barry Salter Tel: 01638 605658
- Sudbury Valentine Hurrell Tel: 01787 247121
- YAPPRS (Young Alert Parkinson's Partners &
Relatives)
Website: yap-web.net
POLIO
FELLOWSHIP (BRITISH )
Eagle Office Centre, The Runway, HA4 6SE. Tel: 0800 018
0586
Email: info@britishpolio.org.uk
Website: www.britishpolio.org.uk
PSORIASIS
ASSOCIATION
Milton House, 7 Milton Street, NN2 7JG. Tel: 0845 676
0076
Email: mail@psoriasis.demon.co.uk
Website: www.psoriasis-association.org.uk
RADAR
(ROYAL ASSOCIATION FOR DISABILITY &
REHABILITATION)
12 City Forum, 250 City Road, London, EC1V 8AF
Tel: 020 7250 3222. Minicom: 020 7250 4119. Email:
radar@radar.org.uk
Website: www.radar.org.uk
RAPE
CRISIS (Suffolk)
Tel: 01473 715333
RAYNAUDS
& SCLERODERMA ASSOCIATION
112 Crewe Road, Alsager, ST7 2JA. Tel: 01270 872776
Email: info@raynaulds.org.uk
Website: www.raynauds.org.uk
- Stowmarket Mrs C Buckledee. Tel: 01449 740851
SCOPE
Cerebral Palsy Helpline Mon-Fri: 9am-9pm & Sat-Sun:
2-6pm.. PO Box 833, MK12 5NY Tel: 0808 800 3333
E-mail: response@scope.org.uk
Website: www.scope.org.uk/helpline
- Central & East of England Office, Suite 1 - Ground Floor, Winston House
Monckton Road, Wakefield. WF2 7AX. Tel: 01924 366711
SENSE
Help & advice for people with sight & hearing problems and their families & carers.
11-13 Clifton Terrace, Finsbury Park, N4 3SR. Tel: 0845 127 0060 Fax: 0845 127 0061 Text: 0845 127 0062 Website: www.sense.org.uk
E-mail: info@sense.org.uk
SOLD
(Special Objectives For The Local Disabled)
A charitable organisation set up to give people with
severe disabilities an opportunity to develop exisiting
skills & to learn new ones.. 36 Harvest Drive, South
Lowestoft Industrial Estate, Lowestoft, NR33 7NJ. Tel:
01502 512617
SPINAL
INJURIES ASSOCIATION (SIA)
SIA House, 2 Trueman Place, Milton Keynes, MK6 2HH. Helpline Tel: 0800 980 0501
Open 9.30am-4.30pm (closed 1-2pm) Mon to Fri.
Email: sia@spinal.co.uk Website: www.spinal.co.uk
SSAFA
(SOLDIERS, SAILORS, AIR FORCE ASSOCIATION)
19 Queen Elizabeth Street, SE1 2LP. Tel: 0845 1300 975
Email: info@ssafa.org.uk
Website: www.ssafa.org.uk
- Suffolk Coastal Area, Tel: 01449 615039 Email: Suffolk@ssafa.org.uk
ST
JOHN AMBULANCE
For first aid, transport & health advice. Priory House, Duckamere, Ipswich, IP8 4AJ.
Tel: 01473 241500 Website: www.sja.org.uk
- Beccles Tel: 01502 719673
- Lowestoft Tel: 01502 569658
STREET
FORGE WORKSHOPS
Opportunities to develop employment skills. Tel: 01379
678543
STROKE
ASSOCIATION - Dysphasia Support
National Stroke Helpline 240 City Road, EC1V 2PR. Tel:
0845 303 3100
Email: info@stroke.org.uk
Website: www.stroke.org.uk
- Regional Centre for East Anglia. Lark House, 117
Eastgate Street, Bury St Edmunds, IP33 1YQ. Tel: 01284
760006.
SUFFOLK
EAST FEDERATION OF WOMEN'S INSTITUTES
Aims to educate & inform women in a wide range of topics & make improvements to the community.
22 Orford Street, Ipswich, IP1 3NS. Tel: 01473 251632
Email: office@sefwi.org.uk
Website: www.sefwi.org.uk
SUFFOLK
PROGRESSION CENTRE (PAPWORTH TRUST)
Offers disabled adults a chance to gain confidence &
develop social & work skills, with different
programmes to match their goals, abilities &
interests.
40-42 Museum Street, Ipswich, IP1 1JQ. Tel: 01473
232146
Email: info@papworth.org.uk Website: info@papworth.org.uk
SUFFOLK
RESPITE CARE ASSOCIATION
Offers free support and practical help in the form of
regular respite breaks, to carers of people who suffer
from ongoing, serious mental health problems.
3 Constable Court, The Street, Belstead, Ipswich,
Suffolk, IP8 3LY.
Tel/Fax: 01473 730929 Email: sr@btconnect.com
TOGETHER WORKING FOR WELLBEING - SUFFOLK COMMUNITY SUPPORT
TOGETHER is a leading national charity working for wellbeing: that means we support people with mental health needs to get what they want from life and to feel happier. We do this by running a range of services across the country; by campaigning and doing research; and by educating local communities about their own mental health needs. In everything we do we are inspired and guided by the hopes and wishes of the people we support.
Website: www.together-uk.org
Suffolk Head Office, 21 High Street , Ipswich, IP1 3QH
Tel: 01473 256218 Fax 01473 256107
Email: suffolkcss@together-uk.org
WAVENEY
WOMEN'S HEALTH INFORMATION CENTRE
Advice & support for women with health/personal
issues. 21 Milton Road East, Lowestoft, NR32 1NT. Tel:
01502 561816 Fax: 01502 582112
Email: wwwhic@wwhic.fsnet.co.uk